Hi friends!
Sooooo, it’s been a while since I’ve updated. Things have not improved, unfortunately. My anemia has worsened along with my symptoms. At times it is an exhaustion beyond explanation. The headaches, ringing in my ears, lightheadedness, heart pounding, shortness of breath, bone pain,
sunlight sensitivity, etc can get overwhelming, but the Lord continues to give me strength for every minute of each day. My hemoglobin dropped to the level of being one tenth of a point away from their automatic transfusion point. It came up a teensy bit with last week’s labs, but we won’t know if it stayed there until I have labs done again (tomorrow). I’m totally at the point that I’m ready for a transfusion. However, with covid-19 the infusion center is banning visitors so I would have to go in all by myself which NEVER happens with me. I never go without a family member as my advocate! If you knew only half of what I have gone through with nurses and doctors not understanding my mast cell disease and not caring for me properly....well, let’s just say you’d know why I refuse to go alone. So, as it stands - I deal with the anemia and all it’s symptoms until restrictions relax a bit. I would greatly appreciate your prayers that they would open up to allow at least one visitor in so I can go ahead with a transfusion. I’ve been dealing with the tougher symptoms and been lying on the couch the majority of the day every day since the beginning of March and it’s getting very old.
 |
| My precious Ezra. Love my sweet Roo! |
On top of everything else, my teeth continue to worsen. They are causing a great deal of pain as well. It’s horrible because they look like I’ve been terrible with my dental hygiene but in all actuality my guess is it’s either my mast cells destroying the enamel or some type of malnutrition. Just my guess. No one really knows for sure what the culprit may be. I’ve been trying to get in touch with my dentist about forming some type of plan, but so far I’ve been unsuccessful at hearing anything back. Please pray that he will get back in touch with me and will have a good plan that we can follow to get this issue fixed!
My brother, SIL, and two youngest nieces came down to surprise my mom for her birthday so we got to spend the day with them. Those adorable little ones are growing so fast!
 |
| Snuggles with my little niece, Valerie :) |
Thank you so very much for your continued prayers and encouragement!
Allison
